Tuesday, December 23, 2008

Getting the word out for Crohn's Disease.

I admit, I have WAY too many different email addresses: two yahoos, one gmail, one msn, photography email, two work emails, comcast... Needless to say, I am constantly missing out on emails. Last month I missed an evite to a party. My friend probably thinks I was just ignoring her, but I wasn't! My gmail account is supposed to forward to my yahoo account but apparently it drops the ball sometimes because today I found an email from last Wednesday that I really wish I had received! Kelly from Nursing Assistant Central sent me an email to let me know that I was included in this article: Coping with Crohn's Disease: 100 Helpful Resources and Communities. What a great resource for people dealing with Crohn's! Even though I'm one of the resources, I could totally use this list as well. I find that there's a ton of resources out there for Celiac but not so much for Crohn's. I think this is because with Celiac you're kind of left up to your own devices to figure out how to heal yourself, so people get out there and build up this community while with Crohn's you're told that the only way to feel better is to medicate, medicate, medicate so people just do what the doctors say and don't go too far outside the box. I hope that as more research comes out about autoimmune disease and the effects of diet, more people will be out there like me trying to find alternative healing methods.

This really makes me want to step up and be a better role model for the Crohn's community and the more public this blog gets, the more I want to work hard to take the best care of myself so that others will see that it's not all suffering when you have this nasty disease. Thank you Kelly for including me in your article and I will do everything I can to make this blog a great resource!

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