Ok friends, I need your thoughts and advice so if you're a regular reader of this blog and know generally what I've been going through this year, I'm urging you to please drop a comment and let me know what you think.
As you know, I was diagnosed this past May with Crohn's disease after many many years of suffering. What prompted the diagnosis was actually my quest to be tested for Celiac disease because as soon as I found out what Celiac was, I was concvinced that it's what I have. The symptoms were all there and I did lots of research and talked to a lot of people and all signs pointed to Celiac. The Crohn's diagnosis was a bit of a surprise but I figured well I guess that's actually what's been making me so sick for so long, and went along with my doctor's diagnosis and treatment (you all know how that's been going....). My Celiac bloodwork has come back negative twice but I have never had a small bowel biopsy, which I know is important for an accurate diagnosis. Ever since I was diagnosed with Crohn's I've had this sticky feeling that there's more to it and that I should keep pushing for Celiac testing but after the past six months of misery on medication, and now feeling much better being taken off the meds, I had decided that I was not going to push any further. I would not ask for a biopsy, I would just go ahead with the gluten free diet because I know it works and why bother having a tube shoved down my throat, right?
Well here's the thing, I believe very strongly in signs and yesterday a few things happened that made me question again whether or not I should proceed with further testing for Celiac. I called my Mom this morning to talk to her about it and she said that she's been thinking recently that it might be best for me to get a second opinion and that she also feels strongly that Crohn's might not be all I'm dealing with here. My reactions to the back and forth with the gluten free diet strongly show that I react to gluten. There's no question about that. The biggest sign I recieved yesterday was a connection to a family link that brought me back to my cousin's health problems. She's been trying to get pregnant for a very long time and has succeeded more than once but can never carry longer than a few months. I've thought ever since I found out that Celiac can contribute to pregnancy issues that this may be something that she should look into and I mentioned it to her a while ago. She's one of the biggest reasons I had wanted to get tested in the past because if I do end up testing positive, I strongly feel that she may have it too. There is already one confirmed Celiac in the bloodline on that side of my family (my Mom's side).
So, I'm the type of person that needs that extra push sometimes and that's why I'm reaching out to you all. If you've been reading this blog and have ever thought to yourself that I should really keep pushing, please let me know. Or if you have any other thoughts on the subject, I'd really like to hear. I've relied heavily on this community of GF bloggers to help me through this time and I can't even begin to tell you how wonderful it's been to have you all around. Thank you so much for your support!!!!