Thursday, October 15, 2009

Insert whitty title :here:

I can't think of anything good for the title of this post! It's a quick one because I am running out to a meeting. I just wanted to say that day two of the gluten free, dairy free, low carb diet is awesome. Flare - GONE. Feeling great and so happy about it. I did break down and have a Magner's last night at the concert that I went to but I regretted it. Not physically, just wasn't feeling like having a drink last night, did anyway, and just shouldn't have. Oh well. The conert was really fun though, it's Ryan Gosling (of The Notebook fame, ::sigh::) and his friend and they created this band called Dead Man's Bones and they sing scary Halloweeny type songs with childrens' choirs. It sounds strange but it's awesome. This video is one of the songs that they sung last night. There was a sign at the venue that said absolutely NO photography or video at the show but I managed to snap one good pic of Ryan. I won't post it here though because I'm afraid they'll come after me! But check out the video anyway. We had a great time!

Wednesday, October 14, 2009

Making progress.

No more whining and complaining about how much I love cake. I just re-read this article about a man that has been through hell because of this disease and it made me realize how lucky I am to be mostly healthy right now. It also made me realize that if I don't make these changes to my diet now, I just might end up living like that man and no piece of cake or cheeseburger is worth the pain and suffering I go through that will only get worse.

I've only been blogging again for a short time but in that time I've received some awesome advice and support and I am so thankful for that! I really feel ready to tackle this and make the changes. No gluten, no dairy, low carbs. I'm avoiding artificial everything, eating as close to nature as possible. I feel better already.

Tonight Sally and I are going to see Ryan Gosling!!!!!!! He's got this band and he sings with kids' choirs... crazy, but so exciting.

Edited to add: I've had several people ask me if I practice yoga as it's an excellent way to exercise, de-stress, and is also great for the digestive system. I would like to get into yoga but haven't yet for several reasons, lack of funds to pay for a class, lack of space to do it at home etc. But I'm going to look into it again. Thanks!!

Tuesday, October 13, 2009

One down, hopefully two to go!

I finally got home from my interview... phew! I feel good about it and am hoping to hear back soon about a 2nd interview. If I do get a second interview, I have to give a 10-15 minute presentation about a healthcare topic.... ummmm... seriously?? I just have no idea what I could possibly talk about....... HA! So I'm kind of excited actually for the second interview and will start working on my presentation right away.

I've been making a tiny bit of progress with my diet. Yesterday I was out and about and needed some lunch and I thought I might stop at this little place in Quincy center that I had heard serves gluten free bread. Well, I hate to say I wasn't surprised about this but, I got to the door and it was closed. Out of business. (Eatin' Healthy, Liz) I was bummed! The owner was the wife of a guy that I used to train at the gym and he had given me a gift certificate a couple of years ago and I never got around to using it. It's a tough spot to have a restaurant in Quincy, there's no parking and not a lot of foot traffic, which is why I wasn't all that surprised that it was closed. There are just so many other options in Q center that are convenient to parking.

Well, I don't have much else for today. Happy Tuesday!

Monday, October 12, 2009

I've got flare!

I wish it were the good kind of flare... my stomach is revolting. I'm hoping it's just anxiety over the fact that I have my first interview in 10 years tomorrow. Or it could be the yogurt I ate today in an attempt to get more probiotics into my diet. Yup, still can't tolerate ANY dairy whatsoever. So I bought some acidophilus (sp?) pills today that I'll start taking tomorrow instead. I think additionally I'm having issues because I started taking a multivitamin with iron last week and it constipated me, so I stopped.. and now I'm becoming unconstipated..... um yeah. Sorry folks, this IS a blog about Crohn's afterall ;-)

Anyway, I'm definitely starting to make the changes to my diet that I need to make. Probiotics - check, gluten free - working on it, dairy free - most definitely after today! It's going to be a baby steps process. The dairy first, that's the easiest and fastest and the one thing I've been trying to do all a long. The gluten is the next step, which shouldn't be too hard. I don't really have much gluteny food in the house anyway. The probiotics start tomorrow. Once I am completely gluten and dairy free I will start cutting back on carbs/starchy foods and sugars. The sugar thing though is something I'm already conscious of.

Ok, well that's enough for now. I need to get to bed. I am not feeling good at all. :(

Sunday, October 11, 2009

My head is spinning.

I spent most of the weekend reading about Crohn's disease and organisms and antibodies and the specific carb diet (again?!?!) and life without bread and I've been emailing back and forth with AJ and he's just about rocked my world. I started getting sick 15 years ago, progressively getting worse until the first ER visit back in the fall of 07, followed by 2 more in 08, and finally a Crohn's diagnosis. I started the gluten free journey in 06 when I thought I might have Celiac. In the last few months, after feeling better on prescription drugs, I gave up caring about my diet anymore. I just wanted my life to go back to normal, and for the most part, it did. But... I still don't have the same energy that I used to. I rarely workout anymore. I run out of breath just walking up a flight of stairs. My hips still often ache and I break out in cystic acne after eating too much sugar (I think it's sugar, still unsure). I'm still using steroids as the excuse for why I've gained so much weight... even though I've been off of them for over a year.

So where's my head at now? Well, my body is saying to clean up my diet. My head says "UGHHHHHH". Going gluten free is easy, that's not the issue. It's cutting way back on starch, because this is the Crohn's problem, not Celiac. My mom used to say that she hoped I didn't have Celiac because it would be so difficult to maintain a gluten free lifestyle. HA! I say now. Oh to just be a Celiac! To cut out gluten and be fine and not have to worry about sugars and dairy and whatever else makes me gassy, crampy, poopy, not poopy, weak, tired, achy... my goodness. I know there are many of you out there that know what I mean and I'm not by ANY means trying to make light of having Celiac disease. Absolutely not at all. I'm just whining because I just feel like whining. If I could just go out and buy some Kinnikinnick donuts well that would be just fine, but I can't. Believe me, I stood at the freezer case this evening wishing I could.

I am the first person to proclaim to be an advocate for healing through diet, and I'm also the first to cheat on said diet. I'm tired, literally and figuratively. I do want to heal myself, not just suppress my symptoms with drugs. It's just that every time I get to this point, where I'm ready to do it, I sit here and think.... what the heck will I eat???? Eggs. It's all I ever eat. Steak and chicken and fish and pork. Some fruit, veggies, a little rice, potatoes. Eating like a caveman perhaps. It's healthy, and it just might be the thing that puts my CD into remission. And maybe I'll get back to the gym. And maybe I'll lose this weight. It's mind over matter here and since I'm not working, I have plenty of time to plan out my meals. Now's the time to just do it. I'm glad I have this place to talk it out and get support. Thanks to you all that have stuck around :)

Friday, October 9, 2009

Going Gluten Free: Take #3,472

Well, I don't know how many of my regular readers are still reading after my little hiatus, but if you've been hanging out with me for a while, you'll understand why this post is so important to me. I took a little break, but then started blogging again last week when I wanted to share my delicious pork and potato/apple/onion dinner with you. I went to see the doc, found out my B12 level was bottoming out, and it made me realize that although I feel better, I am probably not actually healing on the inside. If anything, my insides are silently getting worse. Yes I still have grumbles and groans and cramps and gas and pains and diarrhea and constipation, just to a MUCH lesser degree, thank you pharmaceuticals. But is that really a smart way to live? Eating whatever I want knowing that it's causing my insides to attach themselves?

I've been gluten free, dairy free, and sugar free at different times. I've considered the SCD on more than one occasion. I've seen the benefits of my efforts, and I've seen my body break down literally to the point of losing consciousness when I am not taking proper care. Numerous times. I don't ever want to see the insides of the emergency room ever again.

So why am I writing this out of the blue again? Are you thinking to yourself... oh boy, here she goes again! ? Well let me explain. Last night I received an email from a man named AJ. He's a biochemist that also happens to have Crohn's disease. I'm not going to get into all the details of the conversation we've been having, but just tell you that everything he says confirms all of the research I've done myself. He has scientific proof that Crohn's disease is directly related to diet. I can't get into all the scientific terms becaues I don't fully understand them myself, and I know I'll botch it all up, but the bottom line is that what I've always known to be true, is actually true. Gluten, dairy, sugar..... the common denominator = starch. It's not necessarily the gluten protein, it's the starch in gluten grains, it's also sugars, fructose, lactose, sucrose, sorbitol, malitol... makes complete sense now. The problem I have with sugars are an autoimmune response, not the typical hydrogen response in someone with lactose or fructose intolerance, hence the reason my tests came back negative.

I was blown away by what AJ had to say and we are still having the conversation. He's trying to get his book pulished so once I have more info on this I'll most definitely share it with you. Especially my Crohn's readers.

So now what? He recommends gluten free, low carb, and add probiotics. I of course will also be dairy free. Will I do it? I guess you'll have to keep reading to find out! I'm a little overwhelmed at the moment but now's the best time to do it. I have all the time in the world to make it work. We'll see what happens next.

Thursday, October 8, 2009

I went shopping today and didn't yawn or need to sit down once....

I've only taken two doses of B12.. but seriously, I haven't had this much energy in years. And on top of that it's a particular time that I usually have even less energy, but nope, I feel just fine. Lately I haven't been able to even go shopping, I get fatigued, winded and dizzy so fast. Today I went outlet shopping and managed to traipse through 4 stores and buy an enormous amount of stuff (oops!) without so much as a yawn. I felt fine the whole time! It's amazing, in just two days! I'm so happy.

Dinner with the girls was a lot of fun, sorry I forgot to take my camera with me so no photos. But everyone enjoyed their dinner and no one got sick, so yay for that! The lettuce wraps were so good just as I had heard, I would order them as my meal next time, yum!!! We shared them as an appetizer, I had the lemon chicken for dinner. As Asian food goes, this is pretty Americanized, which is funny because the location that we went to is right on the outskirts of Chinatown. I love authentic Asian food so I was not all that impressed in that aspect, but I understand that it's next to impossible for GF people to go to an authentic chinese restaurant and survive. I just love eating with chopsticks, honestly.

Ok I'm off to check out the damage... I might not have enough money left over to buy much for groceries this week, but at least I will look cute :)

Wednesday, October 7, 2009

Gluten Free Girls Night Out!

Tonight I'm heading out for dinner with Sally, Allie and a new friend, Lisa. I'm pretty excited that we're hitting up P.F. Chang's because I have never been there. I just got my hair cut too so that's exciting. It looks good, but it's a safe choice for me. I have really long hair and I was going to cut it very very short, like chin length. But as soon as I sat in the chair she says "you have very pretty hair" and it was all over. I couldn't do it. So I got about 4 inches cut off and now it rests just below my shoulders. I like it though.

Yesterday I went to see The Doc and he informed me that my B-12 level is getting dangerously low. The range for normal is 200-900 and my number is 294 and dropping. Because B-12 is absorbed in the TI (terminal ileum), my crohn's disease is causing me to not absorb it. He suggested trying supplements first and if that doesn't work I'll have to get injections. Of course I came home and immediately googled it... turns out this is common for Crohn's patients, and I will have to supplement forever. If it turns out I need shots, I will have to have shots FOREVER. Awesome! But the upside is that the low levels of B-12 could be causing my terrible fatigue problems so I hope the supplement works. And the cool thing is, they are disolvable little tablets that taste like kids chewable vitamins. I really hope I see an increase in energy soon, I haven't been exercising and I really need to! I hate feeling weak and tired all the time. I can barely walk up stairs anymore without getting really winded. I took one tablet today and I feel good, I'm sure it won't help overnight but hopefully sooner rather than later!

Well, I am off to dinner! I'll bring my camera....

Friday, October 2, 2009


Today I baked an apple pie, and right now I have chicken cacciatore simmering on the stove. When my roommate gets home we will eat dinner and then head over to our friend's (my cousin) house for an Arbonne spa party! I can't buy anything since I'm broke but it will be fun to have a girls night. I haven't had one in a long time. I can't wait to dive in to that pie! I'm bringing it to the party. I will post photos tomorrow. I spent the afternoon researching cookie recipes. I'm going to make the favors for my sister's baby shower and they are going to be baby shape cutout cookies with icing. I am thinking that each little gift bag will have 3 cookies, one chocolate shortbread, one gingerbread and one sugar cookie. All iced with pastel frosting. I can't wait!! The party is October 24th so I'll post about that later. Yesterday I spent the afternoon planning the party with my mom and my sister's mother-in-law and sister-in-law. It's gonna be fun, I can't wait for my neice to arrive!!! She'll be here in a little over two months!

One of my friends put my resume in at the company that he works for. On the way home last night I was thinking about the fact that it had been a week and I hadn't heard anything. No sooner did the thought cross my mind, the phone rang. It was a recruiter from the company! We talked briefly and she asked me to come in for an interview on October 13th. I am so excited!!!!! I really want this job, it's in the medical technology field and it's a great company. I am really looking forward to the interview. Keep me in your thoughts!! Oops, dinner is ready, goodnight all!